The Checklist
January 19, 2018
aortic stenosis, complex heart defect, double outlet right ventricle, hypertrophic cardiomyopathy, Lifelong needs, medical needs checklist, Megan V., pulmonary stenosis, TGA
There is a checklist. It is several pages long and includes medical jargon I don’t know and hope I never have to understand. Every person who has adopted has been faced with this list. What are you willing to weather? I agonized over that list, checking and unchecking things depending how I felt in that …Read More
Trusting God To Number Our Days
May 12, 2017
complex heart defect, Family Stories, pulmonary stenosis, TGA, VSD
I remember looking at pictures of children and wondering if they were mine. I knew God wanted us to adopt a child. I knew He had a specific child for us. Every time I would look at a picture of a waiting child, I would ask myself, “Are you mine?” God, how will I know …Read More
Meant for This: Parenting Children with Complex Heart Defects
February 20, 2017
adopting again, adopting as first time parents, ASD, February 2017 Feature - Heart, Heart System, infertility, surgery, TGA, toddler adoption, VSD
I want to start by saying that our miracle children astound me. We love them personally and uniquely. Their birthparents are revered in our home; we thank God they had the courage, strength, and compassion to have them and keep them safe. I married my college sweetheart. Kyle is way more incredible than me; I …Read More
He Is A Gift
February 9, 2017
adopting a boy, Family Stories, February 2017 Feature - Heart, Heart System, HLHS, older child adoption, pulmonary stenosis, single atrium heart disease, single ventricle heart disease, TGA
Our son, Matthew, is eight years old. He came home last year in May 2016. Throughout the adoption process and shortly after arriving home, God reminded us that Matthew is a gift. My husband and I would hear “He is a gift” over and over again. God had to remind us. He had to because …Read More
February Special Needs Focus (and Favorite Family Stories): The Month of Hearts
February 6, 2017
advanced heart failure, ASD, complex heart defect, double outlet right ventricle, Favorite Family Stories, February 2017 Feature - Heart, heart defect, Heart System, HLHS, PDA, single atrium heart disease, Tetralogy of Fallot, TGA, TGV, VSD
The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More
Saying Yes to a Child with a Terminal Diagnosis
November 28, 2016
complex heart defect, Heart System, terminal diagnosis, TGA
When we felt God’s pull on our hearts to adopt, it was the year 2012 and we had three biological children, ages 11, 8 and 6. We had never thought we would adopt, but God had created a yearning so strong in our hearts that we couldn’t say no. Adoption in and of itself was …Read More
We’re Not Special
January 5, 2016
complex heart defect, Family Stories, Heart System, HLHS, older child adoption, orphan hosting, single atrium heart disease, single ventricle heart disease, TGA
My husband, Bobby, and I are not special. We keep being told that we are. Ever since starting the adoption process, people keep telling us we are “special”. I don’t always know how to respond. I feel embarrassed and totally unworthy. We don’t belong on that pedestal. Have they seen our very un-special home and …Read More
Willow: adopting a child with complex heart defects
December 5, 2014
ASD, complex heart defect, Family Stories, TGA, VSD
We are all transformed. Every day that goes by, I know that more clearly in my heart and mind than the day before. We have only been home with Willow for five months. My husband and I married right out of college, and we waited a while before deciding we wanted to have children. He’s …Read More
adopting a child with congenital heart disease
May 25, 2014
advanced heart failure, Andrea O., ASD, complex heart defect, double outlet right ventricle, end stage cardiac disease, Family Stories, heart defect, Heart System, single ventricle heart disease, Tetralogy of Fallot, TGA, VSD
Four years ago, I could not describe the structure or mechanism of the human heart. Now, that magical and miraculous pump that provides the essence of life is something I think about every day. What an amazing odyssey it has been! This post is not enough to do justice to the complexity of the topic …Read More
Jadyn
March 1, 2010
heart defect, TGA, VSD
by Sue, mom to Jadyn from China with a SN of TGA, PS and VSD (major heart condition) Our SN check list included mild and/or a correctable heart condition. 35 months after our log-in-date we received a phone call from our agency about a little girl who had recently turned 2 and had a VSD. …Read More