Help for Special Needs Families: Grants, Programs and Services

September 25, 2017 hospital stays, Jennifer B., Parenting Special Needs, speech therapy 1 Comments

As parents to children with special needs it can be difficult to find the best resources for kids, especially if we are in the midst of a difficult time or new diagnosis. Hoping to make the task a bit less daunting here is a list of links to various grants, programs, and services for individuals …Read More

A Life Donated: Part 8

August 20, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, hospital stays, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

What You Might Not Know About Shriners in Cincinnati

July 6, 2017 cl/cp, cleft lip, cleft palate, Craniofacial, craniofacial cleft, hospital stays, July 2017 Feature - Craniofacial, Stefanie, surgery 0 Comments

With craniofacial needs as our focus this month, we thought it would be a perfect time to share a little about a resource for families with kiddos with cleft lip and palate: Shriners Hospital for Children — Cincinnati. We recently had the opportunity to speak with the wonderful folks at Cincinnati Shriners Hospital and pose …Read More

Three Simple Essentials for Your Hospital Stay

March 29, 2017 a father's perspective, February 2017 Feature - Preparing Your Child for Medical Interventions, hospital stays, Randall, surgery 0 Comments

We live in a wonderful country. It doesn’t always feel wonderful, but when we realize how easily accessible basic healthcare is for us we are reminded that it truly is a privilege to call this place home. Many of the children in our adoption communities have been given a shot at a better life because …Read More

Preparing Your Adopted Child for Surgery

March 5, 2017 February 2017 Feature - Preparing Your Child for Medical Interventions, hospital stays, surgery 0 Comments

Adopting a child with special needs often means that the child will need procedures and/or surgery after adoption. Some of these procedures can wait until the child is more adjusted to life with their new family, speaks English and can voice their opinion. Other procedures are more time sensitive and must be done right away. …Read More

Preparing for and Enduring Surgeries and Procedures for Medical Needs Children

February 28, 2017 February 2017 Feature - Preparing Your Child for Medical Interventions, hospital stays, Medical Momma, Rebecca 0 Comments

Special needs don’t always equal medical needs. But sometimes they do. Many of our children require therapies, treatments, hospitalizations or surgical procedures. These can be potentially anxiety-producing for any child, but significantly more so for a child with trauma in their past. So, this month we are focusing on Medical Interventions and how you can …Read More

Wisdom for Enduring Extended Hospital Stays

February 27, 2017 advanced heart failure, Andrea O., complex heart defect, February 2017 Feature - Preparing Your Child for Medical Interventions, heart transplant, hospital stays, Little Hearts Medical, Medical Momma, surgery 0 Comments

When we arrived home with our youngest daughter and fourth CHD child, Rini, in August of 2013, my definition of a long hospital stay was three weeks. When my husband dropped us off at the entrance of the children’s hospital’s Emergency Department straight from the airport, little did I know that my definition of an …Read More

Strength for the Journey: Adopting a Child with Complex Heart Defects

February 26, 2017 atrioventricular canal defect, complex heart defect, Family Stories, February 2017 Feature - Heart, Heart System, heterotaxy, hospital stays, pulmonary atresia, single ventricle heart disease, VSD 0 Comments

I was just able to sit down with a cup of hot tea on a cold and lazy Saturday afternoon, relishing in the quiet and calm. Also know as, daddy is home so he is dodging toddlers and taking care of farm animals while I hide in his office to write this article. With six …Read More

Medical Crisis: Being Your Child’s Best Advocate

February 25, 2017 cerebral palsy, complex medical, February 2017 Feature - Preparing Your Child for Medical Interventions, hospital stays, seizures, surgery 2 Comments

In the summer of 2016 we adopted our precious Sonnet. Her adoption was medically expedited due to her being profoundly malnourished. She was also diagnosed with cerebral palsy and overall global and cognitive delays. What we didn’t know about was the seizures. She was experiencing them the day we took custody of her, but the …Read More

Fighting for Her Heart

February 5, 2017 Family Stories, February 2017 Feature - Heart, heart defect, Heart System, hospital stays, surgery, Tetralogy of Fallot 15 Comments

Just over four years ago, I was waiting in a cold government office in Zhengzhou, China to meet my second daughter. I had hesitantly said yes to adopting a child with a heart condition. In saying yes, I had armed myself with knowledge and facts and learned everything I could about my daughter’s medical diagnosis. …Read More

Preparing Your Child for Medical Interventions: How to Pack for the Hospital

February 4, 2017 February 2017 Feature - Preparing Your Child for Medical Interventions, hospital stays, Medical Momma, Rebecca, surgery 4 Comments

Special needs don’t always equal medical needs. But sometimes they do. Many of our children require therapies, treatments, hospitalizations or surgical procedures. These can be potentially anxiety-producing for any child, but significantly more so for a child with trauma in their past. So, this month we are focusing on Medical Interventions and how you can …Read More

Preparing For Children’s Surgeries and Hospital Stays

October 15, 2016 hospital stays, Medical Momma, surgery 0 Comments

When you have children with medical needs, surgeries and overnight hospital stays become something of a given. The first time one of my kids had surgery, I packed a bag for the hospital and thought I’d gone prepared – that is until the next morning when I had to dry my face on hospital-grade paper …Read More

God of My Children

June 27, 2015 hospital stays, Medical Momma, Rebecca, surgery 1 Comments

Ever learn something, quickly forget it, and need to be reminded again? During our daughter’s extensive surgery last November, God tapped into my medical momma’s fearful heart, comforting me with the revelation that I don’t have to be God of my children. It was a breakthrough parenting moment.  Little by little though, I again started mentally and …Read More

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