Hypo-What?
November 16, 2018
adopting a boy, adopting again, ambiguous genitalia, Disorder of Sexual Development, Family Stories, hypospadias, November 2018 Feature - Urogenital, Urogenital System
Two years after our first adoption, a three-year old waiting boy from China, I began searching the lists for the little girl that would complete our family. In my mind, she would be two or three years old, with a similar need to our son, as we already had trusted specialists in place. In the …Read More
Living in the Unknown
November 12, 2018
ambiguous genitalia, Disorder of Sexual Development, Family Stories, hypospadias, micropenis, November 2018 Feature - Urogenital, Urogenital System
“Sensitive special need. Hypospadias.” That was the listed special need on the precious child when my husband and I first saw the advocacy post. We had different special needs at the forefront of our minds, but something made us pause. Hypospadias was something we knew and understood. Our first son received a surprise diagnosis of …Read More
A Million Times Yes
November 10, 2018
Family Stories, hypospadias, intersex, medical needs checklist, November 2018 Feature - Urogenital, Urogenital System, waiting for referral
“That is a need I could never handle, Lord.” It all began with a checklist. You know, the dreaded medical needs checklist we all fill out in the beginning of the China adoption process that kickstarts the journey to our child. The very checklist we dwell over, pour research over, stress over, and pray over. …Read More
Our Simple Yes: Adopting a Son with Hypospadias
November 8, 2018
Family Stories, hypospadias, November 2018 Feature - Urogenital, Urogenital System
At the beginning of our adoption process we connected with a PA friend of ours to help us walk through our openness form. When it came to hypospadias, she explained that it’s generally a simple fix with a few minor exceptions. We felt confident with its simplicity so we checked yes. In February 2016 all …Read More
November Special Needs Highlight (and Favorite Family Stories): Urogenital
November 2, 2017
ambiguous genitalia, anorectal malformation, bowel management, cloaca, congenital adrenal hyperplasia, Disorder of Sexual Development, Favorite Family Stories, hypospadias, imperforate anus, incontinence, November 2017 Feature - Urogenital, undescended testicle, Urogenital System, VACTERL
The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More
Embracing the Unknowns
December 7, 2016
ambiguous genitalia, Disorder of Sexual Development, Family Stories, hypospadias, November 2016 Feature - Urogenital, Urogenital System
Our son is adventurous, affectionate, good-natured, and strong. He loves playing outside, blowing bubbles, reading books, and playing with anything with wheels. He is absolutely amazing and the perfect addition to our family. I want the world to know all of this about him. What I choose to keep private is information about his special …Read More
So Much More than His Diagnosis
November 30, 2016
first weeks home, first year home, hypospadias, Newly Home, November 2016 Feature - Urogenital, Urogenital System
I could write for days about our journey — our growth, the process, the joy, the tears, the worries, the peace. But for today, I’ll focus a little on the medical aspect of our story because there are so many unknowns, so much research, so much hope…..and knowing you’re not alone in it helps, if …Read More
When You Know a Child is Yours: Adopting a Child with DSD
November 15, 2016
Disorder of Sexual Development, Family Stories, hypospadias, November 2016 Feature - Urogenital, Urogenital System
When my husband and I first began filling out our medical needs checklist we had no idea what most of the conditions were or what we could, as a family, even handle. We figured anything in the “mild needs” category could be managed. It’s a funny thing that happens though when you see a child’s …Read More
He Knows
May 21, 2016
adopting a boy, clubfoot, complex heart defects, Family Stories, hypospadias, PDA, waiver request
Who knew this momma – who had once upon a time envisioned life with my husband to include a couple of children, a spacious home, and (of course!) many family vacations to tropical destinations – would instead learn (and daily re-learn) that the path to the purest peace and the greatest joy is to yield …Read More
grace, garrison & goodbye
December 29, 2014
hypospadias, Kam
If you were to judge my punctuality solely on the basis of my No Hands But Ours posts, you’d be led to believe that I fail to do anything on time! I’m really pretty darn punctual actually but somehow, not here. Still, I’m sure that my last post for NHBO has just been put off …Read More
I had a plan
May 1, 2014
hypospadias, Kam
I have a personal problem. You know, one of those personality deficiencies that are just part of your makeup, part of who you are? This particular problem, though I’d still contest is a strength for the average Joe, pops up during the most inopportune times and throws me for a loop. I’m a planner. I …Read More
Urology Woes & Successes
March 1, 2014
heart defect, hypospadias, Kam, Urogenital System
So happy March, y’all! Are you as excited about spring coming to your neck of the woods as I am about it coming to mine? Whew. And I only live in the South. Can’t imagine how you folks in other parts of the country are still managing to maintain sanity right about now! But hold …Read More
you can't keep a good man down
December 1, 2013
hypospadias, Kam, Urogenital System
I’ve posted here before that I’m an idiot. There’s no denying. And my idiocy is magnified at the pedi urologist’s office. But recently, I scored one for the mommy dummies of the world, because I was right! Our Gabe wasn’t doing well. I couldn’t put my finger on it. He was cranky and pulling at …Read More
baby steps and giant leaps
November 1, 2013
heart defect, hypospadias, Kam, Urogenital System
I’m not sure if I’ve posted here before about the long and winding road we walk with our Joel in regards to education. In a nutshell, Joel came home to us at age 3 having spent his life in an orphanage. He was not speaking Thai at all and we were told by his pediatrician …Read More
not in a million years
April 2, 2013
heart defect, hypospadias, Kam, Urogenital System
So I’m a moron. I mean it. A complete and total dork. My idiocy seems to come out NOT in front of fellow idiots, but around uber smart, genius type people. You know, those who intimidate the heck out of you and before whom you know ahead of time that you should just keep your …Read More
I not be fraid~
February 1, 2012
heart defect, hypospadias, Kam, Urogenital System
Happy February everyone! I for one can’t believe how fast time is moving. I’m sure it’s about to slow to a snail’s pace for my family though as we have just submitted our LOI for a new son this week. The wait has officially begun again. 🙂 Many of you know that we lost our …Read More
David
February 27, 2009
cl/cp, Craniofacial, Family Stories, hypospadias, Urogenital System
by Mara and Kevin, parents to David from China with cleft lip/palate and hypospadias Kevin and I knew before we were married that we might not be able to have biological children, so we had talked about adoption for years before we started the process in September 2006. Even then, we thought about a special …Read More
Micah
January 19, 2009
Family Stories, hypospadias, undescended testicle
By Terry, mom to Micah from China with hypospadias Micah had hypospadias as his need. That meaning he doesn’t urinate through the tip of the penis. There are 3 different stages of hypospadias, one being where the opening is just underneath the tip, the second where the opening is midway back, and Micah’s condition where …Read More