Hypo-What?

November 16, 2018 adopting a boy, adopting again, ambiguous genitalia, Disorder of Sexual Development, Family Stories, hypospadias, November 2018 Feature - Urogenital, Urogenital System 4 Comments

Two years after our first adoption, a three-year old waiting boy from China, I began searching the lists for the little girl that would complete our family. In my mind, she would be two or three years old, with a similar need to our son, as we already had trusted specialists in place. In the …Read More

Living in the Unknown

November 12, 2018 ambiguous genitalia, Disorder of Sexual Development, Family Stories, hypospadias, micropenis, November 2018 Feature - Urogenital, Urogenital System 0 Comments

“Sensitive special need. Hypospadias.” That was the listed special need on the precious child when my husband and I first saw the advocacy post. We had different special needs at the forefront of our minds, but something made us pause. Hypospadias was something we knew and understood. Our first son received a surprise diagnosis of …Read More

A Million Times Yes

November 10, 2018 Family Stories, hypospadias, intersex, medical needs checklist, November 2018 Feature - Urogenital, Urogenital System, waiting for referral 2 Comments

“That is a need I could never handle, Lord.” It all began with a checklist. You know, the dreaded medical needs checklist we all fill out in the beginning of the China adoption process that kickstarts the journey to our child. The very checklist we dwell over, pour research over, stress over, and pray over. …Read More

Our Simple Yes: Adopting a Son with Hypospadias

November 8, 2018 Family Stories, hypospadias, November 2018 Feature - Urogenital, Urogenital System 2 Comments

At the beginning of our adoption process we connected with a PA friend of ours to help us walk through our openness form. When it came to hypospadias, she explained that it’s generally a simple fix with a few minor exceptions. We felt confident with its simplicity so we checked yes. In February 2016 all …Read More

November Special Needs Highlight (and Favorite Family Stories): Urogenital

November 2, 2017 ambiguous genitalia, anorectal malformation, bowel management, cloaca, congenital adrenal hyperplasia, Disorder of Sexual Development, Favorite Family Stories, hypospadias, imperforate anus, incontinence, November 2017 Feature - Urogenital, undescended testicle, Urogenital System, VACTERL 0 Comments

The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More

Embracing the Unknowns

December 7, 2016 ambiguous genitalia, Disorder of Sexual Development, Family Stories, hypospadias, November 2016 Feature - Urogenital, Urogenital System 2 Comments

Our son is adventurous, affectionate, good-natured, and strong. He loves playing outside, blowing bubbles, reading books, and playing with anything with wheels. He is absolutely amazing and the perfect addition to our family. I want the world to know all of this about him. What I choose to keep private is information about his special …Read More

So Much More than His Diagnosis

November 30, 2016 first weeks home, first year home, hypospadias, Newly Home, November 2016 Feature - Urogenital, Urogenital System 0 Comments

I could write for days about our journey — our growth, the process, the joy, the tears, the worries, the peace. But for today, I’ll focus a little on the medical aspect of our story because there are so many unknowns, so much research, so much hope…..and knowing you’re not alone in it helps, if …Read More

When You Know a Child is Yours: Adopting a Child with DSD

November 15, 2016 Disorder of Sexual Development, Family Stories, hypospadias, November 2016 Feature - Urogenital, Urogenital System 1 Comments

When my husband and I first began filling out our medical needs checklist we had no idea what most of the conditions were or what we could, as a family, even handle. We figured anything in the “mild needs” category could be managed. It’s a funny thing that happens though when you see a child’s …Read More

He Knows

May 21, 2016 adopting a boy, clubfoot, complex heart defects, Family Stories, hypospadias, PDA, waiver request 3 Comments

Who knew ​this momma – who had once upon a time envisioned life with my husband to include ​a couple of ​children, a spacious home, and (of course!) many family vacations to tropical destinations​ – would instead​ learn (​and ​daily​ re-learn)​ that the path to the​ purest​ peace and the greatest joy​ is to​ yield …Read More

grace, garrison & goodbye

December 29, 2014 hypospadias, Kam 3 Comments

If you were to judge my punctuality solely on the basis of my No Hands But Ours posts, you’d be led to believe that I fail to do anything on time! I’m really pretty darn punctual actually but somehow, not here. Still, I’m sure that my last post for NHBO has just been put off …Read More

I had a plan

May 1, 2014 hypospadias, Kam 1 Comments

I have a personal problem. You know, one of those personality deficiencies that are just part of your makeup, part of who you are? This particular problem, though I’d still contest is a strength for the average Joe, pops up during the most inopportune times and throws me for a loop. I’m a planner. I …Read More

Urology Woes & Successes

March 1, 2014 heart defect, hypospadias, Kam, Urogenital System 1 Comments

So happy March, y’all! Are you as excited about spring coming to your neck of the woods as I am about it coming to mine? Whew. And I only live in the South. Can’t imagine how you folks in other parts of the country are still managing to maintain sanity right about now! But hold …Read More

you can't keep a good man down

December 1, 2013 hypospadias, Kam, Urogenital System 0 Comments

I’ve posted here before that I’m an idiot. There’s no denying. And my idiocy is magnified at the pedi urologist’s office. But recently, I scored one for the mommy dummies of the world, because I was right! Our Gabe wasn’t doing well. I couldn’t put my finger on it. He was cranky and pulling at …Read More

baby steps and giant leaps

November 1, 2013 heart defect, hypospadias, Kam, Urogenital System 3 Comments

I’m not sure if I’ve posted here before about the long and winding road we walk with our Joel in regards to education. In a nutshell, Joel came home to us at age 3 having spent his life in an orphanage. He was not speaking Thai at all and we were told by his pediatrician …Read More

not in a million years

April 2, 2013 heart defect, hypospadias, Kam, Urogenital System 3 Comments

So I’m a moron. I mean it. A complete and total dork. My idiocy seems to come out NOT in front of fellow idiots, but around uber smart, genius type people. You know, those who intimidate the heck out of you and before whom you know ahead of time that you should just keep your …Read More

I not be fraid~

February 1, 2012 heart defect, hypospadias, Kam, Urogenital System 0 Comments

Happy February everyone! I for one can’t believe how fast time is moving. I’m sure it’s about to slow to a snail’s pace for my family though as we have just submitted our LOI for a new son this week. The wait has officially begun again. 🙂 Many of you know that we lost our …Read More

David

February 27, 2009 cl/cp, Craniofacial, Family Stories, hypospadias, Urogenital System 0 Comments

by Mara and Kevin, parents to David from China with cleft lip/palate and hypospadias Kevin and I knew before we were married that we might not be able to have biological children, so we had talked about adoption for years before we started the process in September 2006. Even then, we thought about a special …Read More

Micah

January 19, 2009 Family Stories, hypospadias, undescended testicle 1 Comments

By Terry, mom to Micah from China with hypospadias Micah had hypospadias as his need. That meaning he doesn’t urinate through the tip of the penis. There are 3 different stages of hypospadias, one being where the opening is just underneath the tip, the second where the opening is midway back, and Micah’s condition where …Read More

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