From Organ Donation To Graduation

February 13, 2019 2019 Features, advanced heart failure, complex heart defect, February 2019 Feature - Heart, Heart System, heterotaxy, large families, malnourishment, pulmonary stenosis, single ventricle heart disease, terminal diagnosis 0 Comments

Have you ever received news that was so hard to hear you actually felt like you were having an out of body experience? The afternoon of Evelyn’s heart catheterization, the day that doctors and surgeons came into a small room to explain to my husband and I that our little girl was more critical than …Read More

Joy in Broken Hearts

February 13, 2018 cleft palate, complex heart defect, developmental delays, Family Stories, February 2018 Feature - Heart, feeding tube, Heart System, hospital stays, mitral valve regurgitation 0 Comments

I first saw my daughter’s face on my thirty-first birthday. There she was. Staring out at us from a computer screen. Her diagnosis was cleft palate, congenital heart disease, and delayed development. We sought out expert advice from an international adoption specialist and then took the leap of love and said Yes. But as I …Read More

Doubly Blessed by PWS (Prader-Willi Syndrome)

November 12, 2017 complex medical, developmental delays, Family Stories, growth hormone deficiency, hip dysplasia, Nutrition, Prader-Willi syndrome 6 Comments

Hi, I’m Kallie. I am married to David, and we have two precious sons through adoption, Jahleel and Camden. Jahleel is five and a half years old and Camden is three and a half. Camden just came home from China this past spring. Both our boys have diagnoses of Prader-Willi syndrome (PWS), but they present …Read More

What We Didn’t Know

October 14, 2017 developmental delays, Developmental System, early intervention, Education, failure to thrive, heart defect, medical needs checklist, October 2017 Feature - Developmental, sign language, speech delay, virtual twinning 0 Comments

Every child is different, and those differences make life a beautiful kaleidoscope. Our family was formed through adoption and through our most recent adoptions we have become familiar with various aspects of developmental delays. We adopted our sons domestically, and then we adopted our two two year old daughters from China one year apart. With …Read More

Unexpected Beauty

July 15, 2017 cleft palate, Craniofacial, declining a referral, Family Stories, hypoxic ischemic encephalopathy, July 2017 Feature - Craniofacial, malnourishment, referral, undiagnosed SN 1 Comments

I sat in my Thursday morning Bible study, sharing my confusion and fears with my prayer partner, Shawna. My husband and I were certain that God had called our family to adoption shortly after our biological daughter, Campbell, was born in 2011. By the time she was 15 months old, we had submitted our dossier …Read More

Nourish

April 4, 2017 feeding tube, Hillary, March 2017 Feature - Feeding Challenges, Nutrition, oral aversion, oral-motor delays, refusing food 1 Comments

nour·ish ˈnəriSH/ 1. provide with the food or other substances necessary for growth, health, and good condition. This is what a mama does, right? We offer ourselves to nourish our children. Biologically, our bodies were made to do this. Emotionally, our hearts were made to do this, too. But a mama is finite. The whole …Read More

The Battle Inside: Parenting a Child with Feeding Challenges

March 31, 2017 failure to thrive, Family Stories, feeding challenges, feeding tube, feeding/swallowing therapy, first weeks home, food issues, H-Pylori, malnourishment, March 2017 Feature - Feeding Challenges, Nutrition, oral aversion, refusing food 0 Comments

We began our adoption journey about three years ago and in that time we completed two separate adoptions. We first traveled to China in 2015 to bring home our son who was just a year old at the time and in 2016 we re-used our dossier bringing home our daughter who had just turned two. …Read More

Tackling Feeding Challenges: Oral Motor Differences and Feeding

March 28, 2017 Education, feeding challenges, feeding/swallowing therapy, food issues, Guest Series, March 2017 Feature - Feeding Challenges, Newly Home, Nutrition, occupational therapy, oral aversion, physical therapy, refusing food, Sensory Processing Issues, Tackling Feeding Challenges 0 Comments

Feeding your child is one of the most basic ways you can bond, and yet can become the one most challenging aspects of parenting for many adoptive families. In this three-part series, Speech Therapist Melissa Pouncey will provide practical places to start working towards peaceful and healthy eating habits, along with more therapeutic information regarding …Read More

Feeding Challenges: “I’ve Got This” and Other Things I Once Believed

March 26, 2017 complex heart defect, developmental delays, early intervention, failure to thrive, feeding tube, feeding/swallowing therapy, malnourishment, March 2017 Feature - Feeding Challenges, Nutrition, oral aversion, paralyzed vocal chords, refusing food, surgery 4 Comments

Major cardiac defects? That’s a little more intimidating than we initially signed up for but nothing a good surgeon can’t fix. Plus I’m a nurse, I can handle the hard. God prepared me for this. Poor oxygenation? That’ll correct itself once her heart is repaired. Severe developmental delays? Of course she’s delayed, but look at …Read More

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